Web Survey Bibliography
Background: Patient-reported outcomes (PROs) from social media use in chronic disease management continue to emerge. While many published articles suggest the potential for social media is positive, there is a lack of robust examination into mediating mechanisms that might help explain social media’s therapeutic value. This study presents findings from a global online survey of people with chronic pain (PWCP) to better understand how they use social media as part of self-management.
Objective: Our aim is to improve understanding of the various health outcomes reported by PWCP by paying close attention to therapeutic affordances of social media. We wish to examine if demographics of participants underpin health outcomes and whether the concept of therapeutic affordances explains links between social media use and PROs. The goal is for this to help tailor future recommendations for use of social media to meet individuals’ health needs and improve clinical practice of social media use.
Methods: A total of 231 PWCP took part in a global online survey investigating PROs from social media use. Recruited through various chronic disease entities and social networks, participants provided information on demographics, health/pain status, social media use, therapeutic affordances, and PROs from use. Quantitative analysis was performed on the data using descriptive statistics, cross-tabulation, and cluster analysis.
Results: The total dataset represented 218 completed surveys. The majority of participants were university educated (67.0%, 146/218) and female (83.9%, 183/218). More than half (58.7%, 128/218) were married/partnered and not working for pay (75.9%, 88/116 of these due to ill health). Fibromyalgia (46.6%, 55/118) and arthritis (27.1%, 32/118) were the most commonly reported conditions causing pain. Participants showed a clear affinity for social network site use (90.0%, 189/210), followed by discussion forums and blogs. PROs were consistent, suggesting that social media positively impact psychological, social, and cognitive health. Analysis also highlighted two strong correlations linking platform used and health outcomes (particularly psychological, social, and cognitive) to (1) the narrative affordance of social media and (2) frequency of use of the platforms.
Conclusions: Results did not uncover definitive demographics or characteristics of PWCP for which health outcomes are impacted. However, findings corroborate literature within this domain suggesting that there is a typical profile of people who use social media for health and that social media are more suited to particular health outcomes. Exploration of the relationship between social media’s therapeutic affordances and health outcomes, in particular the narration affordance, warrants further attention by patients and clinicians.
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Web survey bibliography (4086)
- Displaying Videos in Web Surveys: Implications for Complete Viewing and Survey Responses; 2017; Mendelson, J.; Lee Gibson, J.; Romano Bergstrom, J. C.
- Using experts’ consensus (the Delphi method) to evaluate weighting techniques in web surveys not...; 2017; Toepoel, V.; Emerson, H.
- Mind the Mode: Differences in Paper vs. Web-Based Survey Modes Among Women With Cancer; 2017; Hagan, T. L.; Belcher, S. M.; Donovan, H. S.
- Answering Without Reading: IMCs and Strong Satisficing in Online Surveys; 2017; Anduiza, E.; Galais, C.
- Ideal and maximum length for a web survey; 2017; Revilla, M.; Ochoa, C.
- Social desirability bias in self-reported well-being measures: evidence from an online survey; 2017; Caputo, A.
- Web-Based Survey Methodology; 2017; Wright, K. B.
- Handbook of Research Methods in Health Social Sciences; 2017; Liamputtong, P.
- Lessons from recruitment to an internet based survey for Degenerative Cervical Myelopathy: merits of...; 2017; Davies, B.; Kotter, M. R.
- Web Survey Gamification - Increasing Data Quality in Web Surveys by Using Game Design Elements; 2017; Schacht, S.; Keusch, F.; Bergmann, N.; Morana, S.
- Effects of sampling procedure on data quality in a web survey; 2017; Rimac, I.; Ogresta, J.
- Comparability of web and telephone surveys for the measurement of subjective well-being; 2017; Sarracino, F.; Riillo, C. F. A.; Mikucka, M.
- Achieving Strong Privacy in Online Survey; 2017; Zhou, Yo.; Zhou, Yi.; Chen, S.; Wu, S. S.
- A Meta-Analysis of the Effects of Incentives on Response Rate in Online Survey Studies; 2017; Mohammad Asire, A.
- Telephone versus Online Survey Modes for Election Studies: Comparing Canadian Public Opinion and Vote...; 2017; Breton, C.; Cutler, F.; Lachance, S.; Mierke-Zatwarnicki, A.
- Examining Factors Impacting Online Survey Response Ratesin Educational Research: Perceptions of Graduate...; 2017; Saleh, A.; Bista, K.
- Usability Testing for Survey Research; 2017; Geisen, E.; Romano Bergstrom, J. C.
- Paradata as an aide to questionnaire design: Improving quality and reducing burden; 2017; Timm, E.; Stewart, J.; Sidney, I.
- Fieldwork monitoring and managing with time-related paradata; 2017; Vandenplas, C.
- Interviewer effects on onliner and offliner participation in the German Internet Panel; 2017; Herzing, J. M. E.; Blom, A. G.; Meuleman, B.
- Interviewer Gender and Survey Responses: The Effects of Humanizing Cues Variations; 2017; Jablonski, W.; Krzewinska, A.; Grzeszkiewicz-Radulska, K.
- Millennials and emojis in Spain and Mexico.; 2017; Bosch Jover, O.; Revilla, M.
- Where, When, How and with What Do Panel Interviews Take Place and Is the Quality of Answers Affected...; 2017; Niebruegge, S.
- Comparing the same Questionnaire between five Online Panels: A Study of the Effect of Recruitment Strategy...; 2017; Schnell, R.; Panreck, L.
- Nonresponses as context-sensitive response behaviour of participants in online-surveys and their relevance...; 2017; Wetzlehuetter, D.
- Do distractions during web survey completion affect data quality? Findings from a laboratory experiment...; 2017; Wenz, A.
- Predicting Breakoffs in Web Surveys; 2017; Mittereder, F.; West, B. T.
- Measuring Subjective Health and Life Satisfaction with U.S. Hispanics; 2017; Lee, S.; Davis, R.
- Humanizing Cues in Internet Surveys: Investigating Respondent Cognitive Processes; 2017; Jablonski, W.; Grzeszkiewicz-Radulska, K.; Krzewinska, A.
- A Comparison of Emerging Pretesting Methods for Evaluating “Modern” Surveys; 2017; Geisen, E., Murphy, J.
- The Effect of Respondent Commitment on Response Quality in Two Online Surveys; 2017; Cibelli Hibben, K.
- Pushing to web in the ISSP; 2017; Jonsdottir, G. A.; Dofradottir, A. G.; Einarsson, H. B.
- The 2016 Canadian Census: An Innovative Wave Collection Methodology to Maximize Self-Response and Internet...; 2017; Mathieu, P.
- Push2web or less is more? Experimental evidence from a mixed-mode population survey at the community...; 2017; Neumann, R.; Haeder, M.; Brust, O.; Dittrich, E.; von Hermanni, H.
- In search of best practices; 2017; Kappelhof, J. W. S.; Steijn, S.
- Redirected Inbound Call Sampling (RICS); A New Methodology ; 2017; Krotki, K.; Bobashev, G.; Levine, B.; Richards, S.
- An Empirical Process for Using Non-probability Survey for Inference; 2017; Tortora, R.; Iachan, R.
- The perils of non-probability sampling; 2017; Bethlehem, J.
- A Comparison of Two Nonprobability Samples with Probability Samples; 2017; Zack, E. S.; Kennedy, J. M.
- Rates, Delays, and Completeness of General Practitioners’ Responses to a Postal Versus Web-Based...; 2017; Sebo, P.; Maisonneuve, H.; Cerutti, B.; Pascal Fournier, J.; Haller, D. M.
- Necessary but Insufficient: Why Measurement Invariance Tests Need Online Probing as a Complementary...; 2017; Meitinger, K.
- Nonresponse in Organizational Surveying: Attitudinal Distribution Form and Conditional Response Probabilities...; 2017; Kulas, J. T.; Robinson, D. H.; Kellar, D. Z.; Smith, J. A.
- Theory and Practice in Nonprobability Surveys: Parallels between Causal Inference and Survey Inference...; 2017; Mercer, A. W.; Kreuter, F.; Keeter, S.; Stuart, E. A.
- Is There a Future for Surveys; 2017; Miller, P. V.
- Reducing speeding in web surveys by providing immediate feedback; 2017; Conrad, F.; Tourangeau, R.; Couper, M. P.; Zhang, C.
- Social Desirability and Undesirability Effects on Survey Response latencies; 2017; Andersen, H.; Mayerl, J.
- A Working Example of How to Use Artificial Intelligence To Automate and Transform Surveys Into Customer...; 2017; Neve, S.
- A Case Study on Evaluating the Relevance of Some Rules for Writing Requirements through an Online Survey...; 2017; Warnier, M.; Condamines, A.
- Estimating the Impact of Measurement Differences Introduced by Efforts to Reach a Balanced Response...; 2017; Kappelhof, J. W. S.; De Leeuw, E. D.
- Targeted letters: Effects on sample composition and item non-response; 2017; Bianchi, A.; Biffignandi, S.